Imagine getting a disease before you were even old enough to know what a disease was. Cystic Fibrosis is a genetic disease that can either affect the person from birth, or later in life. (Source: Medlineplus) Regardless of what type of Cystic fibrosis (CF) that you have, living with the symptoms can be tough. That is why organizations like the Cystic Fibrosis Foundation are striving to raise awareness on the disease, important tests to take, and treatments.
Some Hard Facts
CF is an inherited disease of the mucus and sweat glands and can even be life threatening! The worst part is, CF cannot be prevented as it is inherited. (Source: Medlineplus) It mostly affects the:
- and reproductive organs.
This disease can cause your mucus to be thick and sticky. When it gets this way, it can be bad for the lungs, causing breathing issues and giving bacteria a good opportunity to grow. (Source: Medlineplus) Fortunately, there are many tests available that a person can take. Tests that can help diagnose the disease! Medline Plus states that the tests available are gene, blood and sweat tests, and that treatments involve: chest physical therapy, nutritional and raspatory therapies, medicines and exercise.
Awareness Campaigns on the Rise
The Cystic Fibrosis Foundation (CFF) has set up several campaigns to help raise awareness on the disease. Their goal to help others understand the tests, symptoms and treatments that come with CF, and how it can affect the lives of those who have the disease. Since Cystic fibrosis is a life-threatening, genetic disease that cannot be prevented, affects over 70,000 people worldwide, and currently allows no cure, the CFF must spread the word to as many people as possible! Their campaigns include publishing articles, creating fundraising events, hash tags (#HOWL4ACURE), and providing resources for learning and sharing.
#HOWL4ACURE is a hash tag that was inspired by actor JR Bourn and the cast of Teen Wolf. These actors and colleagues banded together to share the wealth of knowledge on the disease. JR Bourne was born with CF and has dealt with symptoms his whole life! (Source: CFF.org) So the hash tag was created, and they have utilized their fame to draw big attention and get more people to read up on the goings on around Cystic Fibrosis.
What to Do Now…
Cystic Fibrosis is an inherited disease that affects tens of thousands of people around the world. Those who must live with the disease should not have to be alone in the situation. Interested supporters can read up on CF to better support! Sharing on social media, word of mouth to peers, helping at fundraising events, and donating time or money are all great ways to help organizations like the Cystic Fibrosis Foundation make the world a better, and smarter place. Do you live with, or know anyone who has Cystic Fibrosis? Regardless if you do or not, take advantage of May and Cystic Fibrosis Awareness month, and spread the word!